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Alan Franciscus

Editor-in-Chief

HCV Advocate



Showing posts with label Personal Stories. Show all posts
Showing posts with label Personal Stories. Show all posts

Monday, March 2, 2015

McHenry man cured of hepatitis through new drugs

McHENRY – Ray Roach reflects on the grim prognosis a doctor delivered to him during a hospital stay nearly four years ago and smiles.

He smiles a lot these days, in fact. Twisting free of a noose will do that for a person.

Roach, 52, of McHenry is among the first of a new crop of patients celebrating a remarkable cure. Diagnosed at age 46 with Hepatitis C, a liver disease caused by the Hepatitis C virus, Roach spent years on a health see-saw, and at one point, was near death.

Thursday, February 26, 2015

Langford: Doctors prescribe, not insurance companies

"Our legislators have the opportunity this year to support legislation designed to address problems with excessive use of prior authorization and step therapy, that too often let patients in Florida slip through the cracks with no coverage for appropriate therapies."

More than 15 years ago, I was diagnosed with Hepatitis C. While the disease has created a number of challenges, one particularly frustrating and troublesome problem has been obtaining coverage for medications that my physicians have prescribed because I've been forced into “fail first,” or “step therapy,” protocols.

Fail first protocols are management processes used by health plans that require a patient to try the least expensive treatment to address a problem, despite what his or her physician recommends. Only after trying and failing on the least expensive option, and possibly additional treatments, can a patient receive coverage for the medication the physician originally prescribed.

In 1998, my physician advised me to try a recently approved Hepatitis C treatment, Ribavirin, meant to be taken in addition to Interferon. My insurance company required me to fail on Interferon by itself before I could get the superior combination of the two as prescribed by my doctor.

Read more....

Saturday, February 21, 2015

Hepatitis C drug a costly but promising cure

Sallie Wickens’ life followed a death-defying narrative that traced the medical arc of hepatitis C:
A blood-transfusion infection after a car accident in 1959, when she was 5; a positive test for the virus when she was 30; 10 years of deteriorating health; debilitating interferon drug treatments that didn’t work; a liver so damaged she needed a transplant.
And then, her doctor, hepatologist Laura Alba, walked into an exam room last month at St. Luke’s Hospital and gave Wickens, 60, a big smile.

UK; Hunting a Silent Killer: How to Cure Hepatitis C in the Undiagnosed

Hepatitis C has a cure, but how do we find those who need it? Patrick Strudwick reports on one attempt to identify some of the estimated 100,000 undiagnosed people in the UK.
A young woman – jeans and boots and wild hair – is sitting in a cubicle in the Accident and Emergency department of the Royal London Hospital as a junior doctor swishes back the curtain.
"I'm just going to take some blood," says Dr Emma Wallis.
"Just one?" asks the patient, spying the paraphernalia.

Wednesday, February 11, 2015

New drugs, price war provide hope for hepatitis C patients

Sallie Wickens’ life followed a death-defying narrative that traced the medical arc of hepatitis C:

A blood-transfusion infection after a car accident in 1959, when she was 5; a positive test for the virus when she was 30; 10 years of deteriorating health; a debilitating course of interferon drug treatments that didn’t work; a liver so damaged she needed a transplant.

And then, her doctor, hepatologist Laura Alba, walked into an exam room last month at St. Luke’s Hospital and gave Wickens, 60, a big smile.



Monday, February 9, 2015

Only the Sickest Hepatitis C Patients Get High Cost Drugs in Medi-Cal

Drugs may be behind her, but Lovelace now lives with Hepatitis C, a result of her drug use. The disease is damaging her liver.

“I can sleep 20 hours a day, literally, with no interruptions, just sleep," she says.

The treatment Lovelace needs could cost the state as much as $85,000 for a full course.  Only people with advanced liver disease or other severe related conditions are eligible for the treatment under Medi-Cal.

Read more...

A New Liver and the Right Care Make a Rutgers Patient Feel Young Again

The liver transplant center at Rutgers New Jersey Medical School is one of just two such units in the state
 
Mati Muñoz is 65 years old – filled with the enthusiastic energy that comes with a second chance at life. A decade ago, says Muñoz, who lives in Woodbridge Township, N.J., her liver was being destroyed by hepatitis C, a viral disease she believes she contracted as a girl in her native Cuba from a poorly sterilized needle used in a medical procedure.

“My coworkers said I looked like a ghost,” Muñoz recalls. Her symptoms included insomnia, depression, bloating, nausea – and an especially nasty decline in mental function caused by blood toxins that were degrading her brain.

Muñoz went on a registry to receive a liver transplant and over the next two years her symptoms intensified as she waited for a suitable donor.

Read more...

Friday, February 6, 2015

Can organ donations transplant personal qualities?

GRAND RAPIDS, Michigan (WZZM) — It's been a long-debated topic ever since organ transplants became possible: Can organ-donation recipients really inherit memories, talents, and qualities of the donor?

Dr. Michael Hagan believes it happens. In fact, he says he's living proof.

"It's not that I wished it to happen," Hagan says. "It just happened."

Read more...

Thursday, February 5, 2015

Photo gallery: Hepatitis C more curable than ever

New and costly drugs have revolutionized the treatment of hepatitis C. Kansas City Care Clinic (formerly the Kansas City Free Clinic) has been successfully treating patients, many of whom are uninsured. The clinic has also helped patients find financial assistance for the extremely costly medications.

Read the personal stories and see the photos here

Read more here: http://www.kansascity.com/news/local/article9314771.html#storylink=cpy

Monday, February 2, 2015

My life with hepatitis C

María José Gandasegui is hopeful a new generation of drugs will cure her of the virus 

 María José Gandasegui was 12 when she began to suffer from prolonged bouts of extreme fatigue. Her family had no idea what was wrong with her, and people around her began labeling her lazy. She tried to make up for it by spending extra hours studying at school.

She ended up with two university degrees, a PhD on 18th-century law, a job as a court clerk, and three children, all of which she managed despite long periods of exhaustion. Finally, at the age of 48, she learned that she had hepatitis C, a virus that had been continually eating away at her liver.

Now 66, the last few years have been particularly hard for Gandasegui: cirrhosis, an encephalopathy caused by liver degeneration that severely affected her ability to concentrate, and a liver transplant followed by serious complications that put her in hospital for five months, nearly killing her.

Read more....

Friday, January 23, 2015

Native AIDS Survivor, Activist Runs Marathon: ‘We CAN Run Marathons too’

On January 18, 2015, I completed my first full marathon in Phoenix. It wasn’t easy because statistics told me Natives have the shortest life span after HIV infection.

Back in 2002 when I was diagnosed with HIV and Hepatitis C in Phoenix, my health was at a border between HIV and AIDS. I was immediately taken to a Native AIDS support group. To this day, I am the only one from that group who is still alive.

Born and raised on the San Carlos Apache Reservation in Arizona, I never thought a tribal would get AIDS. Education was extremely limited about the virus. Rumors were rampant when the virus was discovered, and I remember looking for red or purple spots on my body thinking it was Kaposi’s Sarcoma, a disease AIDS patients got in the early days.

Read more at http://indiancountrytodaymedianetwork.com/2015/01/23/native-aids-survivor-activist-runs-marathon-we-can-run-marathons-too-158837

Thursday, January 22, 2015

Longmont Woman Cured Of Hepatitis C, Credits New Drugs

DENVER (CBS4)- A woman from Longmont has been cured of Hepatitis C during her participation in a clinical trial testing an expensive new drug.

Kim Bossley is thanking the drug Sovaldi for changing her life.

It was 2005 when Bossley learned she had Hep C. Both Kim and her mother were infected during Kim’s birth through a blood transfusion. Kim’s mother died when the disease destroyed her liver.

Read more...

Monday, January 19, 2015

UK: Apology is wanted by patients who are contaminated by tainted blood

IT WAS a transfusion that was supposed to help Sally Vickers deal with a blood condition, but she says it has given her a death sentence.

Those are the stern words from the 53-year-old who was pumped full of contaminated blood more than 30 years ago.

As a result she contracted hepatitis C – a condition that affects the liver – and has resulted in her giving up work, feeling tired and knowing it could one day kill her because the condition she was born with stops her getting treatment for the virus.

Read more...

Tuesday, January 6, 2015

Canada: Hepatitis C treatments are 'history in the making' at a high cost

BillyBob McPherson lived on Ottawa’s streets as a young teenager before “running away with the carnival.” The 55-year-old doesn’t know exactly when during his colourful life he contracted hepatitis C — he thinks it might have been in Texas in the 1980s where he had surgery and blood transfusions while working as a carny.

But without treatment, he believes, the disease would have ended his life.

Today, he is disease free, a living testament to the wonders of new drugs developed to cure the liver disease with few or no side effects. But he is also an example of the painful realities of the new treatments.

Read more...

Monday, January 5, 2015

Lawmakers want investigation into VA’s botched treatment of Grand Junction veteran

DENVER — Rodger Holmes served his country in Vietnam.

After he came home to Grand Junction, his struggles with depression and alcoholism left him homeless but he entered treatment programs, worked his way back and spent the last years of his life serving his community, counseling other veterans facing demons he knew well.

He might still be doing so had the 64-year-old not gone to the VA Hospital in Grand Junction last summer to finally treat his Hepatitis C — had the hospital and the system of care he and veterans are supposedly entitled to not failed so spectacularly to serve him.

Read more...

New drugs offer hope, barriers for hepatitis C patients

For patients with hepatitis C, the last year has brought great hope: New drugs that are highly effective with few side effects. But their high cost has led Medicaid officials in Pennsylvania and other states to put up barriers for patients, treating only the sickest ones and leaving many others to wait.

"This is an unprecedented approach we've had to take with these drugs," said Terri Cathers, pharmacy director for Pennsylvania's Office of Medical Assistance Programs. "We've not done this before for other treatments as long as I've been in the business."

The approach, she said, is a direct result of the cost, which can range up to $150,000 per patient.

Read more at http://www.philly.com/philly/health/20150104_New_drugs_offer_hope__barriers_for_hepatitis_C_patients.html#HAz2fKXJskLoLyFP.99